Resources

Related Resources for Supportive Care:

Local/Ocala FL Area

Hospice of Marion County

Advent Health

Ocala Regional Medical Center

West Marion Community Hospital

National

National Partnership for Hospice Innovation

www.hospiceinnovations.org

Get Palliative Care
www.getpalliativecare.org

Center for Advancement of Palliative Care
www.capc.org

Palliative Doctors
www.palliativedoctors.org

Aid for the Hearing Impaired

The Florida Relay Services is a communications system that allows hearing persons and Deaf, hard of hearing, or speech-impaired persons to communicate by telephone. Florida Relay customer service is available 24 hours a day 365 days a year at 1-800-676-3777 (English) or 1-800-676-4290 (Spanish) For more information visit Florida Relay Services

For Spanish-Speakers

Compassionate Care Spanish-language HelpLine: 877-658-8896.
Are you caring for a loved one who is seriously ill? Do you have questions about grief and where to find support? Do you have questions about hospice services and end-of-life care?

Cuidando con Cariño is a toll-free HelpLine that offers information and resources for people living with or caring for someone with a serious illness. Our bilingual staff can answer questions on grief, caregiving, advance directives and other end-of-life issues. They can also help you find community hospice or palliative care programs and services. Call the Compassionate Care Spanish-language HelpLine today for a compassionate, listening ear and free information.

Caregiving and Advocacy Resources

Transitions — is a no-charge program in Marion County for those with life-limiting illnesses but who are not ready for hospice care.
GovBenefits.gov — Your Benefits Connection: GovBenefits is a partnership of many Federal agencies and organizations with a shared vision— to provide improved, personalized access to government agencies.
Aging with Dignity: Advocates for the needs of elders and their caregivers, with a particular emphasis on improving care for those at the end of life.
Americans for Better Care of the Dying (ABCD): ABCD is a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families.
On Our Own Terms: Based on two years of research and production, “On Our Own Terms” takes Bill Moyers to the front lines of the movement to improve end-of-life care and reports on the best models for change.

Death, Dying, Grief, & Bereavement Support

Monarch Center for Hope & Healing — Hospice of Marion County offers grief workshops at no charge to the community. Available to children, teens and adults.
Beliefnet: A multi-faith independent site which features articles of the nation’s most accomplished and respected journalists in the fields of religion, spirituality and morality.
CareGiver: An information resource on long-term care.
Dying Well: Resources for people facing life-limiting illness, their families, and their professional caregivers.
Professional Chaplaincy: Its Role and Importance in Healthcare
Caring Bridge: Free, secure personalized websites that support and connect families and friends during end-of-life care.
Learn about the dying process.

Speakers Bureau: Your First Choice

Contact our Speakers Bureau for a professional speaker on a variety of hospice-related subjects; available to make a presentation to your church, club or civic group, including:

Hospice Overview: what hospice IS and what it ISN’T
Five Wishes (Advance Directives and DNR)
Transitions Overview: Resources for those with advancing illness
Understanding and Living with Grief
Monarch Center for Hope & Healing Overview
Is it a Senior Moment or Something More Serious?
Volunteering for Hospice of Marion County
Catheters and UTIs
Caring For Your Cancer Patients
Dementia and Delirium: Caregiver Issues at the EOL
Infection Control and DNRs
Importance of Managing Your BP
Opioid Medication: Safe and Effective
Managing Respiratory Symptoms
Medication and Food Interactions
Stress Management for Staff

To arrange for a speaker or training, call 352-854-5230 or email here.

Our Support Groups (no charge; all are welcome)

www.transitionsfl.com – monthly groups meet for programs, lunch and tip-sharing for caregivers.
Monarch Center for Hope & Healing – community support for those who have lost a loved one.
Alzheimer’s Caregiver Support groups – meet monthly; call Bev Crumpler, (352) 854-5200.

Hospice Affiliated Companies

Florida Palliative Equipment, LLC, dba Accent Medical — an authorized non-profit durable medical equipment supplier, serving the tri-county area. Accent Medical sells directly to the public through its warehouse and at its new store located at 920 Bichara Blvd in The Villages.

Center for Comprehensive Palliative Care, LLC and Availacare, dba Carewell Supportive Care— programs to provide pain and symptom management for those in any stage of illness. When you are facing a serious illness, you need relief from pain or other symptoms, such as fatigue, nausea, loss of appetite and shortness of breath. Relief from stress; support for your family. The Center works directly with your physician.

General Information about Hospice

Florida Hospice and Palliative Care Association, Florida hospice organization References to hospice programs throughout Florida, all of which are Medicare and Medicaid certified and fully licensed.
National Hospice and Palliative Care Organization (NHPCO) the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States.
American Academy of Hospice and Palliative Medicine: The only organization in the United States for physicians dedicated to the advancement of Hospice/palliative medicine, its practice, research and education.
Growth House, Inc.: Resources for life-threatening illness and end of life care.
Hospice and Palliative Nurses Association: The mission of the HPNA is to promote excellence in Hospice and palliative nursing.
Hospice Foundation of America: General information about Hospice.
Hospice Net: Comprehensive website for both caregivers and patients, with many articles dealing with Death & Dying and Caregiving & Grief.
Visit: Medicare.gov and you’ll find we rank among the highest in the nation on quality of patient care.

Downloads

Carewell Bill of Rights -2021

Speak Up for Carewell – 2021